14 May

Yesterday was our first Mother's Day! I got a lovely present from Max (new pyjamas for getting up in the night to look after baby), in addition to the usual gift and card from the unit staff. They are so good to us all. Some mums in the unit seemed a little down - mostly thoise who expected their babies to be home by now and so weren't really happy about having their first Mother's Day in hospital. I actually didn't care - I was simply happy to be a mum! (pic - bath with Mama!)

We went for a walk in the pram as well - first time - as Max has been good off oxygen overnight. It was quite fun, but when he went to sleep we were nervous about his breathing. He looks much paler in 'real' light than the fluros of the unit.

Today, though, was fantastic. After another good night with regard to his oxygen saturations, we were permitted to take him out on day release (feels like parole!). Yes, Max came home for a few hours!! He fell asleep in the car, was very well behaved at home (only one little grizzle), and we feel a little more confident.

He also has another liver function test this morning - the last count (conjugated bilirubin, I think) was 77, (normal is around 10). We were hoping for around 40-50, but again Max surprises us and he produced a count of 19! So, this means his liver is functioning properly again, which means that he doesn't need to have monogen( the formula he's on), which means he will be able to go back onto breast milk hopefully later this week! We've been waiting for this, as there are two freezers full of the stuff, and we really don't want all those hours of expressing to have been in vain!

We're not sure what will happen this week - we're still hoping he'll be coming home, but as always - we work one day at a time. Today was a good one.