The past few days have been rather a struggle. Max, after doing wonderful things with feeding, has now regressed and for a whole day simply refused the bottle. He loves to suck, but won't swallow the milk once it's in his mouth. We're so frustrated, but we are told simply to persevere.
There are many and varied techniques being offered to us to try and improve matters, and we are trying them all, but mostly everyone believes it will just be time and practice. It's so demoralising when last week he had taken full bottles on occasion to today only managing to get 20ml down him in 45mins.
He also had some vomits - with a 'normal' baby that wouldn't be an issue, but our worry is the possibility of Max aspirating milk into his lungs. Even a tiny amount could prove problematic for him.
But, on the good side, today Dr Scott said we could take him off his O2 saturations monitor - except for feeding - so he is more portable now! In a week or so we may even be able to take him for walks outside the hospital for a few hours in between feeds. We may end up having to take him home on a naso-gastric tube (apologies for my incorrect spelling in previous posts - I've only just seen this term written down!) as it may take Max several months more to truly learn how to take full suck feeds. So, no home oxygen (as we have assumed all this time), but we will probably have to learn tube care instead. Whatever we need to do!
And some good news - my cousin and his partner have welcomed their son Michael William. He was born early in the morning on 29 April, in Dunedin, New Zealand. Welcome!
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