8 March

I spent ages at the hospital today. Max was basically no different, but his oxygen requirements are up to 35-38%, sometimes higher if he can’t get himself out of a desat. It’s a bit worrying – I hope it’s only growth needed, and no other problems. They did a chest x-ray today to make sure there's no other respiratiory or lung issues.

He had more blood taken this morning for full blood tests. They check all kinds of levels, and hopefully he’ll be OK on all counts. His bilirubin count is high, almost double the last one, which means his liver is getting worse. They’ll have another ultrasound soon to make sure there’s nothing untoward happening.

Kirby (surgeon) came in to check his wound site. He seems very happy, and said we could take the sutures out (there are four) today. He also said the hernia can wait a while before being fixed, which is great.

Feeds are up to 3ml per hour.