Quite a nice, stable day. Max slept very well overnight – from midnight to about 8am – and had no braddys and no big desats. He was in 26% oxygen when I arrived, and was told he’d pretty much been in that % all night.
No more bowel movements, but apparently the surgeon had been in, and while he was pleased with the progress, was going to do an ‘anal dilation’ sometime today. Sorry, Max, you don’t really need this much of your life on record! Basically, though, the lower parts of his digestive system have slightly atrophied during all this time of disuse, and so they may need a bit of help getting wide enough to allow movement through. Sounds messy.
His breathing is good, so Vanessa (consultant) decided to try him on3 litres per minute through his low flow, rather than 4 litres. He did seem to struggle a bit while I was there, with a couple of desats, but with higher oxygen (30-35%) he seemed OK.
He had a follow-up eye check as well, and they seem pleased with the post-surgical appearance. Next eye check will be a week from Wednesday.
1 comment:
YAY Max! We are so proud of your progress and your 100 days milestone is only an indication of amazing things to come for you.
Love Byuko Taras, Chocha Lori, Lachlan and Christian xxx
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