Yesterday his bottom was much, much worse, almost ulcerated. It must be so very sore for him. So, we're on our third type of cream to try and clear it up. He's also got very bad diarrohea, so now he's on full Elecare formula - a very elemental one, which hopefully will make it a bit better. We'll see.
His hernias are still huge, but the surgeon would prefer to wait longer to give Max time to get his breathing more under control.
He is now on "infra-nasal" oxygen - which are much shorter prongs, and instead of a mix of air & oxygen he has pure oxygen, but at a very low flow, almost nothing. We hope that he'll actually get to the stage of having no support at all, but it is likely he'll be coming home with this type of oxygen support.
He also met Grandad for the first time - see photo!
Today he has his first vaccinations, and if he has no real reactions he'll be moved to Level 2 in the next 48 hours! This is a move from Intensive/Critical Care to Special Care. We are very nervous, and we have been told that for long-term inmates' parents the transition can be quite hard. So, we're very proud of Max's progress, but are a bit nervous of the whole move. We like where we are!
His feeding will be the next project, as he is still a bit slow on the bottle (falls asleep after a short time!). He'll have to get fully able to feed before we take him home (we really don't want to have to have a nasal-gastric tube at home, unless there's no way around it). Day by day...
1 comment:
Awwww! Max and his Grandad! What a lovely photo.
Hope Max's move to Level 2 isn't too traumatic for you all.
Love,
Cathy (and Matt)
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