So much better today! When I visited this morning, Max was still on 4 litres of flow, and saturating well on 30% oxygen. I did a change of nappy & clothes when he woke up (and seemed hungry), fed him (now up to 8ml per hour), then a cuddle. He sat in 27% throughout, with only a few desats. However, he was breathing very rapidly – 120-150 breaths per min. After about an hour or so, he did settle down, but it was quite strange.
So, the plan is this week to get him up to 15ml per hour feeds, check for a few days to see if he’s tolerating it all, then hopefully take out the central line (which is in his head at the moment). They’ll have to be really sure that he won’t need the PNS anymore, as it would be quite a headache (no pun intended) to have to put it back in. Anyway, it’s the PNS that is doing the damage to his liver, not the actual line itself, so hopefully once the PNS is eliminated, the liver will begin repairing itself. He has a liver ultrasound tomorrow, just to check out what’s going on.
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