Quite an unsettling day today. We went in this morning, both had a cuddle (see pic of Max sucking his thumb while being cuddled by Tato), then Max had a bath and a weigh (up to 2730g). Over the past few days his oxygen requirements have gone up slightly every day. Today it was worse – needing 40-50% normally and up to 70% when he desats. It was quite horrible to watch – he simply wasn’t breathing up. Eventually the consultant on duty agreed that he’d try Max on 4 litres per minute flow, and if he doesn’t respond, then they’ll put him back on CPAP for a while. While this sound like a step back, it actually made us more comfortable. 
This will be the real long haul – getting his lungs better. We know (as were reminded again today) that there is, in all likelihood, going to be some neurological damage, but how that will manifest in Max, we won’t know for a while. For the meantime, it’s the lungs that are the real problem. He simply has to learn to breathe properly, and with new lung growth, hopefully the oxygen processing will become more efficient.
Tough day.
This will be the real long haul – getting his lungs better. We know (as were reminded again today) that there is, in all likelihood, going to be some neurological damage, but how that will manifest in Max, we won’t know for a while. For the meantime, it’s the lungs that are the real problem. He simply has to learn to breathe properly, and with new lung growth, hopefully the oxygen processing will become more efficient.
Tough day.
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