Max has actually had about five reasonably good days. He still desats every time he wriggles, but his swings are way less. He has had loads of visitors over Ukrainian Christmas – a very popular boy. Really, we’re just waiting to see when they’ll try extubation again.
His heart surgery scar is enormous, but looks very clean and tidy. His stoma is working well – lots of curdy stuff. He’s worked his way up to 5ml EBM profused per hour. My milk expressing is going OK – back on 2-3 domperidone per day, plus all the home remedies I can muster – cashews, fenugreek tea, stout shandy…
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