Such a down day. No huge problems, but for some reason he’s not brilliant on his breathing and now his stoma excretions are all water. So, they’re trying yet another version of formula.
We went back in the afternoon, 45min after the new feeds were started. Max extremely quiet. Some little curds in his bag, but also some water. I was worried about his abdomen, as it looked a little swollen – however they checked and assured me his stomach was ‘soft’ and it seemed OK. Not convinced, we went home rather down.
Later – we got a call and it seems he has some kind of infection, probably from his central line being in so long. So, various cultures sent off and blood tests etc and probably more antibiotics. God, I hope they work. He looked unwell to us. We feel very drained.
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