My mother has been visiting from New Zealand, and this was her last day. We went in to see Max in the morning – he was pretty good. He’s still fighting the ventilator each time he wiggles, but basically sitting in 21-28%. They’ve had some trouble with getting him feeding, but they’re pushing on. He’s on a lactose-free formula, moving from 3ml to 6ml profusion per hour. We are pretty sure that his biggest problem with getting off the ventilator isn’t really his lung condition, but rather his brain development. As Dr Simon describes it – the ‘computer hasn’t kicked in yet’. At this age (31+6 weeks corrected) he’s simply not supposed to be breathing. The brain needs to develop and grow in order to tell the lungs to breathe.
Kim (nurse) told us that is can be hard to get babies on CPAP to gain weight, as a huge amount of energy is used in breathing. So, in some ways, a few more weeks on the ventilator, simply growing, is quite a good idea.
We discovered Max lost some weight a few days ago. Not good and a bit scary. He must gain. However, it could have been the diuretics and just a good fluid loss. Can’t tell.
Kim (nurse) told us that is can be hard to get babies on CPAP to gain weight, as a huge amount of energy is used in breathing. So, in some ways, a few more weeks on the ventilator, simply growing, is quite a good idea.
We discovered Max lost some weight a few days ago. Not good and a bit scary. He must gain. However, it could have been the diuretics and just a good fluid loss. Can’t tell.
No comments:
Post a Comment